Greetings! I am part of a team of MIT and Harvard graduate students doing a research project for an HIV care management organization based in South Africa. They have a unique HIV education, counseling, testing and treatment platform, and as a byproduct of their primary activities they generate large amounts of data. Among other things, this data includes person-level data on HIV status over time, linked to demographics and other information on individual “knowledge, attitudes and practices” with respect to HIV/AIDS. This also includes detailed information on adherence to treatment for those positive individuals covered under their program.
These records are maintained in a strictly confidential manner (using bar codes and biometrics), and currently not used in any way outside of the organization at present. However, we see a few compelling opportunities to expand access to HIV testing and treatment by utilizing this valuable information. For example, this could be used to make more effective program funding decisions or improve to the knowledge of best practice in adherence. We are wondering if there are any analogous uses of HIV data that any forum members have come across – or if you would find such data useful in your own work. We would greatly appreciate your thoughts and look forward to the conversation.