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This community is no longer active as of December 2018. Thanks to those who posted here and made this information available to others visiting the site.

Introductions

By Jessica Haberer, MD, MS | 23 Jan, 2013

Dear Adherence and Retention Community,

At GHDOnline, we thought it would be nice to get to know each other better as members of this community. So whether you've just joined or been a member of the community for a while, please take a moment to introduce your work and interests to everyone else.

To make things easy, please feel free to use this format:

Name:
Position/Degree:
Location:
Populations you work with:
Areas of Interest:

I am an GDHonline member because:
I would like to see more discussion on:

I'll start things off:

Name: Jessica Haberer
Position/Degree: Internist, Research Scientist, Instructor (MD, MS)
Location: Center for Global Health, Massachusetts General Hospital, Boston, MA, USA
Populations: Adults (including serodiscordant couples), children
Areas of Interest: Measurement of ART adherence, ART adherence interventions, HIV prevention with pre-exposure prophylaxis (PrEP), use of mobile technology to measure and support adherence

I am an GDHonline member because: I enjoy learning about diverse viewpoints within this field. It's a wonderful opportunity for members to present their work, ask questions, and get answers. Through my membership, I feel more connected to and aware of the key issues in Adherence and Retention.
I would like to see more discussion on: I am currently very interested in the use of HIV treatment as prevention. For instance, I am concerned that high levels of adherence may be challenging for people with HIV who have not been ill (i.e. those with high CD4 counts). A recent observational study by Adakun et al in JAIDS found that higher CD4 counts (>250) were associated with treatment interruptions and persistent viremia after initiation of ART. It will be important to see more studies in this area, especially as RCTs. How can we support people with high CD4 counts, so that the promising results from HPTN 052 can be realized outside of clinical trial settings? Along similar lines, I am excited about PrEP as a potential prevention method; however, many critics say we should instead focus on treatment as prevention, which is also obviously beneficial for the individual already infected with HIV. I am curious how the A&R Community sees this issue in light of my (and others') concerns about adherence.


The information in this e-mail is intended only for the person to whom it is
addressed. If you believe this e-mail was sent to you in error and the e-mail
contains patient information, please contact the Partners Compliance HelpLine at
http://www.partners.org/complianceline . If the e-mail was sent to you in error
but does not contain patient information, please contact the sender and properly
dispose of the e-mail.

Replies

 

Moses Bateganya Replied at 3:05 PM, 23 Jan 2013

Dear fellow GDHonliners
Thank you for sharing on the listserv. Below are my details
>
> Name: Moses Bateganya
> Position/Degree: MBchB, MMed -(Internal Medicine)- Makerere University; MPH- University of Washington
> Location: Atlanta, Georgia
> Populations you work with: Support general HIV care and treatment in resource limited settings
> Areas of Interest: Pre-ART care and retention in different HIV programs
>
> I am an GDHonline member because: I find the quality of interaction very helpful in answering many of the challenges I have found in different country HIV programs I have visited or worked in
> I would like to see more discussion on: at the moment I am encouraging programs and researchers to share anything they have on retention across the continuum of care and would like to thank those who have already share.
>

Ingrid Katz Replied at 3:20 PM, 23 Jan 2013

Thanks Jessica!
Hello GHD'ers. Here is my info:
Name: Ingrid Katz
Position/Degree/Location: Instructor in Medicine, Harvard Medical School
Associate Physician, Division of Women's Health, Brigham and Women's Hospital,
Research Scientist, Center for Global Health, Massachusetts General Hospital, Boston, MA, USA
Populations: Adults, adolescents
Areas of Interest: Treatment initiation and pre-ART engagement in care, Risk Perception

I am an GDHonline member because: I enjoy hearing about real-time research and program implementation - particularly in resource limited settings.
I would like to see more discussion on: I am currently very interested in engaging HIV-positive people who qualify for treatment into care, particularly those who are most vulnerable and most at risk for high mortality. My hope is through the multi-disciplinary network that accesses this site that I can come to learn more about diverse modalities of work that has been done and effective.

Kelli O'Laughlin Replied at 4:05 PM, 29 Jan 2013

Name:
Kelli O'Laughlin, MD, MPH

Position/Degree/Location:
Research Fellow, Medical Practice Evaluation Center (Massachusetts General Hospital)
Emergency Medicine Attending Physician (Brigham & Women's Hospital)
Instructor of Medicine (Harvard Medical School)
Faculty, Harvard Humanitarian Initiative (Harvard University)

Populations you work with/Areas of Interest:
HIV testing and HIV-related services for displaced populations (especially refugees and internally displaced persons)

I am a GDHonline member because:
I appreciate the way the GDH online community helps me keep my fingers on the pulse of innovative HIV-related research in low resources settings. I value the opportunity to share ideas and resources with colleagues with similar research interests.

I would like to see more discussion on:
HIV testing and care in refugee populations


The information in this e-mail is intended only for the person to whom it is
addressed. If you believe this e-mail was sent to you in error and the e-mail
contains patient information, please contact the Partners Compliance HelpLine at
http://www.partners.org/complianceline . If the e-mail was sent to you in error
but does not contain patient information, please contact the sender and properly
dispose of the e-mail.

Edy Nacarapa Replied at 4:18 PM, 30 Jan 2013

I am GHDOnline member,And im added as member since last year when i was a medical student at catholic University of Mozambique,
Because, i am so worried about HIV/TB situation on my country,Now im medical doctor, general practice, and working at big Hospital treating specially HIV/TB PatientsThe situation of Adherence is too critical,
Thanks for this Forum, i believe it helps me to get 3D-vision about TB

____________________________________Edy Nacarapa M.D Global Health ExpertClinical Director AdvisorHospital CarmeloDivision of HIV/TB TreatmentChokwe - MozambiqueAv. TrabalhoCell: +258825133571
Cell: +258847435380
Skype: edy.nacarapa
E:





> Subject: Re: [Adherence & Retention] Introductions
> From:
> To:
> Date: Tue, 29 Jan 2013 16:06:43 -0500
>
>
> Kelli O'Laughlin replied to the discussion "Introductions" in the Adherence & Retention community.
>
> Reply contents:
> "Name:
> Kelli O'Laughlin, MD, MPH
>
> Position/Degree/Location:
> Research Fellow, Medical Practice Evaluation Center (Massachusetts General Hospital)
> Emergency Medicine Attending Physician (Brigham & Women's Hospital)
> Instructor of Medicine (Harvard Medical School)
> Faculty, Harvard Humanitarian Initiative (Harvard University)
>
> Populations you work with/Areas of Interest:
> HIV testing and HIV-related services for displaced populations (especially refugees and internally displaced persons)
>
> I am a GDHonline member because:
> I appreciate the way the GDH online community helps me keep my fingers on the pulse of innovative HIV-related research in low resources settings. I value the opportunity to share ideas and resources with colleagues with similar research interests.
>
> I would like to see more discussion on:
> HIV testing and care in refugee populations
>
>
> The information in this e-mail is intended only for the person to whom it is
> addressed. If you believe this e-mail was sent to you in error and the e-mail
> contains patient information, please contact the Partners Compliance HelpLine at
> http://www.partners.org/complianceline . If the e-mail was sent to you in error
> but does not contain patient information, please contact the sender and properly
> dispose of the e-mail."
>
> --
> View this post online:
> <http://www.ghdonline.org/adherence/discussion/introductions-9/?id=13811361&fo...>
>
> Unsubscribe or change your email notification settings:
> <http://www.ghdonline.org/users/edy-nacarapa/edit/>
>
> Contact the GHDonline team:
> <http://www.ghdonline.org/contact/>
>
> You can reply to this discussion by responding directly to this e-mail; it will be shared with all community members and posted as is. Files cannot be added via email attachment and must be uploaded directly to GHDonline.

Edy Nacarapa Replied at 4:55 PM, 30 Jan 2013

I am GHDOnline member,And im added as member since last year when i was a medical student at catholic University of Mozambique,Because, i am so worried about HIV/TB situation on my country,Now im medical doctor, general practice, and working at big Hospital treating specially HIV/TB PatientsThe situation of Adherence is too critical,Thanks for this Forum, i believe it helps me to get 3D-vision about TB

____________________________________Edy Nacarapa M.D
Global Health Expert
Clinical Director Advisor
Hospital Carmelo
Division of HIV/TB Treatment
Chokwe - Mozambique
Av. Trabalho
Cell: +258825133571
Cell: +258847435380
Skype: edy.nacarapa

E:

www.hospitalcarmelo.org





> Subject: Re: [Adherence & Retention] Introductions
> From:
> To:
> Date: Wed, 30 Jan 2013 16:19:41 -0500
>
>
> Edy Nacarapa replied to the discussion "Introductions" in the Adherence & Retention community.
>
> Reply contents:
> "I am GHDOnline member,And im added as member since last year when i was a medical student at catholic University of Mozambique,
> Because, i am so worried about HIV/TB situation on my country,Now im medical doctor, general practice, and working at big Hospital treating specially HIV/TB PatientsThe situation of Adherence is too critical,
> Thanks for this Forum, i believe it helps me to get 3D-vision about TB
>
> ____________________________________Edy Nacarapa M.D Global Health ExpertClinical Director AdvisorHospital CarmeloDivision of HIV/TB TreatmentChokwe - MozambiqueAv. TrabalhoCell: +258825133571
> Cell: +258847435380
> Skype: edy.nacarapa
> E:
>
>
>
>
>
> > Subject: Re: [Adherence & Retention] Introductions
> > From:
> > To:
> > Date: Tue, 29 Jan 2013 16:06:43 -0500
> >
> >
> > Kelli O'Laughlin replied to the discussion "Introductions" in the Adherence & Retention community.
> >
> > Reply contents:
> > "Name:
> > Kelli O'Laughlin, MD, MPH
> >
> > Position/Degree/Location:
> > Research Fellow, Medical Practice Evaluation Center (Massachusetts General Hospital)
> > Emergency Medicine Attending Physician (Brigham & Women's Hospital)
> > Instructor of Medicine (Harvard Medical School)
> > Faculty, Harvard Humanitarian Initiative (Harvard University)
> >
> > Populations you work with/Areas of Interest:
> > HIV testing and HIV-related services for displaced populations (especially refugees and internally displaced persons)
> >
> > I am a GDHonline member because:
> > I appreciate the way the GDH online community helps me keep my fingers on the pulse of innovative HIV-related research in low resources settings. I value the opportunity to share ideas and resources with colleagues with similar research interests.
> >
> > I would like to see more discussion on:
> > HIV testing and care in refugee populations
> >
> >
> > The information in this e-mail is intended only for the person to whom it is
> > addressed. If you believe this e-mail was sent to you in error and the e-mail
> > contains patient information, please contact the Partners Compliance HelpLine at
> > http://www.partners.org/complianceline . If the e-mail was sent to you in error
> > but does not contain patient information, please contact the sender and properly
> > dispose of the e-mail."
> >
> > --
> > View this post online:
> > <http://www.ghdonline.org/adherence/discussion/introductions-9/?id=13811361&fo...>
> >
> > Unsubscribe or change your email notification settings:
> > <http://www.ghdonline.org/users/edy-nacarapa/edit/>
> >
> > Contact the GHDonline team:
> > <http://www.ghdonline.org/contact/>
> >
> > You can reply to this discussion by responding directly to this e-mail; it will be shared with all community members and posted as is. Files cannot be added via email attachment and must be uploaded directly to GHDonline."
>
> --
> View this post online:
> <http://www.ghdonline.org/adherence/discussion/introductions-9/?id=13811361&fo...>
>
> Unsubscribe or change your email notification settings:
> <http://www.ghdonline.org/users/edy-nacarapa/edit/>
>
> Contact the GHDonline team:
> <http://www.ghdonline.org/contact/>
>
> You can reply to this discussion by responding directly to this e-mail; it will be shared with all community members and posted as is. Files cannot be added via email attachment and must be uploaded directly to GHDonline.

Marion Sumari Replied at 1:36 AM, 31 Jan 2013

Name: Marion Sumari-de Boer
Position/Degree: Post doc researcher
Location: Moshi, Tanzania
Populations you work with: Adults in resource-limited questions
Areas of Interest: Factors influencing adherence to cART and interventions

I am an GDHonline member because: I like to be updated on adherence related issues
I would like to see more discussion on: the use of real time medication monitoring in resource-limited settings

Rogers Hellman Replied at 7:54 PM, 31 Jan 2013

Primarily in response to Marion's posting:
Name: Rogers Hellman
Background: IT ( former VP in the technology division of AOL)
Location: Charlottesville VA
Working in: Guatemala and Haiti but would like to expand
I have built an HIT system for developing countries: it works off-line and has biometrics for patient identification.. The system (when online) feeds into a real-time monitor of disease/health states.

Sandy Sheble-Hall Replied at 8:43 PM, 31 Jan 2013

Could you elaborate on a "HIT" system Rogers?

Rogers Hellman Replied at 12:11 PM, 13 Feb 2013

Sandy: Sorry for the delay in answering. I simply didn't see your question until today.
Health Information Technology. At its heart and EMR that works off-line, but because data does get replicated to a centralized DB when the Internet does become available, we are able to do various things such as surveillance, transfer records and the like.

Sandy Sheble-Hall Replied at 12:25 PM, 13 Feb 2013

Thanks Rogers! This sounds very interesting and applicable to data collection in the field. I too do work in Haiti and could see how it could assist in pt. record keeping greatly. Is it commercially available?

Rogers Hellman Replied at 12:36 PM, 13 Feb 2013

Sandy:

In a matter of 2 or 3 weeks it will be commercially available. If
interested, please feel free to contact me or call:
703.625.6975
In the meantime, once I have your email, I'd be happy to send you a link
where you can install it on a Windows box to play with it.

Rogers

--
Rogers Hellman
Four Corners Medical Software, LLC
www.semrsys.com

This Community is Archived.

This community is no longer active as of December 2018. Thanks to those who posted here and made this information available to others visiting the site.