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NY Times article on patients lost to follow up in Kenya

By Sarah Arnquist | 26 Oct, 2010 Last edited by Sophie Beauvais on 27 Dec 2010

In today's health section, UC Berkeley researcher and journalist David Tuller writes about adherence and retention in Kenya. It's worth checking out.

It's largely a narrative of his experience at one clinic, but might be worth checking out to see how the issue is being portrayed to the general public.

http://www.nytimes.com/2010/10/26/health/26cases.html?_r=1&ref=health

Also, for more technical information on definition of LTFU, treatment failure, etc. see this previous GHDonline discussion http://www.ghdonline.org/adherence/discussion/to-count-lost-to-follow-up-ltfu...

And the research referred to by the article is available here http://www.ghdonline.org/adherence/resource/patient-retention-in-antiretrovir...

Replies

 

Sarah Bird Replied at 11:26 AM, 26 Oct 2010

Without ranging too much off topic, on the wider issue of how diseases and their treatments are being portrayed, Scientific American recently did a special issue "Scientific American - Lives" that portrays a day in the life of patients from around the world with a variety of chronic conditions including Autism in the USA, to MDRTB in Pakistan, HepB in Ghana, and Chagas in Argentina; as well as a series of stories about those who treat these conditions.

The site is: www.sa-lives.com and the whole publication can be downloaded at http://www.sa-lives.com/images/lives_final_opt.pdf

(Disclaimer - my husband wrote the article on MDRTB in Pakistan, he nor I get anything from sending this out but I just wanted to be clear)

Sarah Arnquist Replied at 11:36 AM, 26 Oct 2010

Sarah, thanks for sharing! I hope all is well in Pakistan.

Sydney Rosen Replied at 12:05 PM, 26 Oct 2010

Just for your information, there is an update to one of the studies referred to in the NYT article, the systematic review of retention rates from PLOS Medicine. A review of studies published after the PLOS Medicine paper appeared can be found at http://onlinelibrary.wiley.com/doi/10.1111/j.1365-3156.2010.02508.x/abstract. It is open access. It is part of a supplement to Trop Med entirely about patient retention in care. Some articles are open access and some are not. (I was the guest editor of this supplement, which doesn't matter but I should state it.)

K. Rivet Amico, PhD Replied at 12:23 PM, 26 Oct 2010

Great material- thank you!
Rivet



K Rivet Amico, PhD
Research Scientist
Center for Health, Intervention and Prevention
University of Connecticut
810 360 8716
800 518 0243 (fax)

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