The Vitality Institute is pleased to launch a 90 day global public consultation to obtain feedback on a draft set of guidelines for personalized health technology. This follows a recent commentary in the Journal of Health Communication – Consultation for Collective Action on Personalized Health Technology: Eliminating Ethical, Legal, and Social Barriers for Individual and Societal Benefit (open access).
We ask members of the YP Chronic Disease Network to provide feedback on the guidelines. Your comments will inform the design of personalized health technologies and the appropriate stewardship of personal health data. The Vitality Institute intends to address the following questions through the consultation:
1. How can the hardware and software of personalized health technology be optimally designed to support end-users in behavior change?
2. To what extent should scientific evidence be incorporated into the design of personalized health technology?
3. How can the private sector collaborate with academia to advance health using data from personalized health technology?
4. What safeguards are required to ensure consumer safety and transparency of information? How can the private sector effectively protect personal health data to minimize data breaches?
5. What monitoring and assessment tools will most effectively support evaluation of the drafted Responsibility Guidelines for Personalized Health Technology?
Following the consultation, the guidelines will be revised and promoted as a self-regulatory framework, and implemented in partnership with relevant stakeholders.
We invite you to provide input on the guidelines at the following link: http://www.thevitalityinstitute.org/ELSI. You can also share details of the consultation on social media using the hashtag #TrustTech.
Link leads to: http://thevitalityinstitute.org/site/wp-content/uploads/2015/07/Responsibility-Guidelines-for-Personalized-Health-Technology.pdf
Link leads to: http://thevitalityinstitute.org/projects/personalized-health-technology/
Link leads to: http://www.tandfonline.com/doi/full/10.1080/10810730.2015.1063404#abstract